One is a patient with Cystic fibrosis. This diagnosis means that she is in fact a frequent flyer and in the hospital every few months or so. That in itself is sad because it’s not an easy disease to live with. Anyway…this patient is very familiar with the healthcare system and because of this they have become a drug seeker. This patient knows the words to say and the manipulations to get what they think they need. It is very exhausting…mentally…to care for this patient…because you have to constantly be on your toes and be one step ahead of them so that they don’t manipulate you into giving them what you want.
Anywho…this patient is also a smoker…not a very good combination with the chronic lung disease they have…but hey what do I know…I’m only a nurse…The patient consistently asks to leave the floor to go down for a smoke. No normally we can’t really push the situation that far and refuse to let patients leave…but because of the patient’s past history of going down and shooting up Benadryl in the PICC line…we do have cause to tell this patient no…Usually the nurses just do not want to deal with it and so they let the patient go…but when a nurse does say no…boy does the patient ever get upset…even to the point of unhooking the IV fluids by themselves and going down anyway…and of course coming back high and strung out. This patient is in fact only doing herself a great injustice and speeding up the progress of the diagnosis…but they can not be argued with. It is frustrating on so many levels.
Patient number 2 has endocarditis from using IV drugs. The drug of choice is Percocet which of course has that layer of fungi on it which does not mix so well with the heart. The endocarditis required heavy duty IV antibiotics and because of the past history of drug abuse the patient had to stay in the hospital for 2-3 months to finish the antibiotic therapy. At first the patient was talking big dreams of staying clean and “I gave up that lifestyle…I won’t ever do drugs again, I came too close to death this time.” (Now this patient had had a mitral valve replacement 6 months earlier and had already ruined it with this new trip to the hospital). The patient seemed sincere and many of the nurses choose to believe what was said…that was until we started to notice that the patient was high and strung out for a good three or four day stretch. A family member had come to visit him and our conclusion was had brought a little extra to add to the party. The doctors were a little mad and did a urine drug test (of course we didn’t tell him what it was for…instead making some excuse about the antibiotics and how it’s routine). The drug test came back positive for a drug that we were not giving him. The patient was required to sign a drug- free contract…basically saying that if it happened again the doctors would be forced to discharge the patient even though the antibiotic treatment would not be finished.
Everything was good for about a week…I happened to be off and when I came back I heard that the patient was doing very well with no back slides to the drugs. However, that first night back, I became very suspicious of the patient’s behaviors. One of buddies of the patient ended up being in the hospital around the same time and so they began to spend a lot of time together. Now this other patient was on a PCA pump where he was getting 0.2mg dilaudid. I began to suspect the reason they were spending so much time together was to share the dilaudid. Turns out the patients were unhooking the PCA and then hooking it back into the IV access of the other and in fact sharing the pain meds. When I found this out…let me tell you that I was very upset. At that moment, I wanted nothing to do with either patient…and didn’t really care anymore…but I had to put that behind me and care for them both.
The caring of healthcare professionals are not enough. The patient has to want to get better and improve, or there is no chance anything will ever change. All the nurses and doctors can do is try to help the patients see what is best and what they should do…but many times while we are saying and teaching it…we know that it will not change and they will just be back in the hospital a few months later for the same self-destructive habits. It has to be one of the most depressing things about the job…knowing that you can’t help everyone.