So this past week has gotten me thinking about nursing school and
when we talked about nursing ethics and the role of a nurse. We were
informed that we would see many ethical issues and we would not always
agree with the way things were handled in the practice. To make this
easier on us to decide whether something was ethical or if it was our
own personal biases and feelings making us feel uneasy, we were taught
about the different principles of nursing ethics: autonomy, veracity,
justice, non-maleficence, fidelity, paternalism and beneficence to name a
few.
Of course I have faced many issues where I wondered if
nursing ethics or medical ethics were being forgotten, but none quit
like this one patient I cared for this week.
She was an elderly
lady who was in with a bad prognosis. She was dying of cancer...stage
IV. There was nothing else that could be down and in fact the treatment
was only prolonging her misery. She was alert and oriented during the
day, but at night she experienced sun-downers and would quite often
forget where she was and have to be re-oriented.
Her family was
great and took turns in a rotating schedule staying by her side at all
most all times. However, they felt that she should not be told the
truth of her condition. They did not want her to know that she was
dying and that the treatment was not helping. They ordered the doctors
and nurses to not say a word about the prognosis and in fact to tell her
that she was getting better. The doctors tended to agree saying "she's
confused anyway so what difference does it make...she's not aware of
what is going on".
I was very disturbed by the response of the
doctors because I knew from first hand expierence that the patient was
in fact mentating and did know what was going on around her, thanks to
many great conversations.
One night while I was in the room
doing a dressing change, the patient asked me, "I'm dying aren't I?
This is the end, I can feel it." I looked up at the daughter and had to
make a decision quickly about how I was going to answer it.
I'm
not usually one to beat around the bush, or not be direct when a patient
asks me a question but I knew that I had to tread carefully with this
answer. I looked her in the eye and told her something like "Well
honey, you know your body and mind better then anyone else, and many
times, the feelings we get are our mind's way of telling us the truth
about our health." She sighed and nodded her head.
Her daughter
walked out of the room, and while I finished the dressing change, we
made small talk. When I left the room, the daughter was waiting for me,
with a very unhappy look on her face. She immediately began to say how
it was inappropriate for me to tell her mother that and i had no right.
I looked at her and said, "Your mother knows more then you think...she
knows that you aren't telling her the truth...she also knows that you
guys love her very much and it's hard for you...but what you guys are
forgetting is that...by not telling her and not letting her decide to
quit the care...you guys have managed to take away the dignity of your
mother." She looked at me and nodded and said she hadn't thought of it
like that. She went and called the rest of her family. Within an hr,
she came back and asked for the doctors to come in and talk to her
mother.
I was happy to see that the patient was finally able to
know the complete truth of her situation. The next morning the patient
had decided to go home, and spend the remainder of her days with her
family. She was incredibly happy and at peace with her prognosis and
her decision. It made my day.
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